International Federation of Marfan Syndrome Organizations

Queremos mantener esta información actualizada, si encuentras un error, por favor avísanos a: admin@marfan.org.mx

 

Argentina

 

Dra. Mónica M. Segura

Charcas 3391 3º piso office 32

Buenos Aires, Republic Argentina

www.marfan.org.ar

email: marfan@argentina.com

 

Australia

 

Queensland, Australia

Susanne Hemphill

Marfan Association, Queensland Branch

P.O. Box 294

Sumner Park, Queensland 4074

Australia

Telephone: ++61 7 3376 6160

Fax: ++61 7 3279 1927

e-mail: marfanaustralia@hotmail.com Victoria, Australia

Marfan Association Victoria Inc.

Sally Ferguson, President

PO Box 42

Sunbury, Victoria. 3429

Australia

Telephone: ++61 3 5784 1357

Fax: ++61 3 5784 1357

e-mail: yvette1@bigpond.com

New South Wales, Australia

Marfan Support Group

Trudy Whaite

Syndey - ++61 (02) 8230-0424

mail@marfan.net.au

www.marfan.net.au

 

Belgium

 

Yvonne Flemal - Jousten

Association Belge du Syndrome de Marfan

27A, rue Residence Air Pur

B 4623 - Magnee

Belgium

Telephone: ++32 4 355 13 59

e-mail: yvonne.jousten@easynet.be

www.marfan.be

 

Brazil

 

Brazilian Marfan Association (Marfan Brasil)

Flavia Gioia, President

E-mail: flavia.gioia@br.abnamro.com

www.marfan.com.br

Contact:

Adriano Rodrigues

Rua dos Juritis - Quadra 07 - Apt.403 - Ed. Mirela

Jardim Renascença

Sao Luis, MA, Brazil

CEP 65075-240

Tel: 55 98 3236 0455

Cell phone: 8129 9224

E-mail: adrianocostarodrigues@yahoo.com

 

Canada

 

"Making A Difference"

"Le Pouvoir de changer les choses"

Eva Theofilopoulos, Executive Manager

Josipa Paska, Director

Central Plaza Postal Outlet

128 Queen St. S., P.O. Box 42257

Mississauga Ontario L5M 4Z0

Canada

Telephone: (905) 826-3223; FAX: (905) 826-2125

e-mail: josipa.paska@aarhuskarlshamn.com

info@marfan.ca

Website: www.marfan.ca

 

China

 

Lydia Chen

e-mail: lcsnoopy@21cn.com

 

Costa Rica

 

Michelle Gómez

Tel: (506) 817- 0001

E mail: mich_go19@hotmail.com

 

Cuba

 

Carolina Douglas

Cuban Association of Marfan Syndrome

Calle 34 No. 310, apto2

entre 3ra y 5ta, Miramar

Ciudad de La Habana 11300

Cuba

Fax: ++337 330145

 

Denmark

 

Ms. Bodil Davidsen

Danish Marfan Association

Frederikshave 34 st. th.

DK-3400 Hillerod

Denmark

Tel. ++45 4826 3652

Fax ++45 4826 3752

e-mail: msdk@get2net.dk

www.marfan.dk

 

Finland

 

Leila Raninen

Finnish Marfan Association

PO Box 1328 SF-00101

Helsinki, Finland

Telephone: ++35894171727

e-mail: i info@marfan.fi

www.marfan.fi

 

France

 

Annette Belloncle

Association Syndrome de Marfan Amis d'Antoine (A.S.M.A.A.)

B.P. 63

F-95160 - Montmorency

France

Telephone/Fax: ++33 139 64 56 12

e-mail: jtihierr@free.fr Paulette Morin

Association Française du Syndrome de Marfan (A.F.S.M.)

13, Allee des Terasses

F-77200 Torcy

France

Tel. ++33 164620375

Fax ++33 160 057 910

e-mail: vivremarfan@caramail.com

www.vivremarfan.org

 

Germany

 

Marfan Hilfe (Deutschland) e.V.

Post Box 0145

D-23691 Eutin

Germany

Tel: ++49 4521 8305035

Fax: ++49 4521 8305034

e-mail: kontakt@marfan.de

www.marfan.de

 

Greece

 

Xanthi Zafiris

Greek Association of the Marfan Syndrome

Saliverou 5 N. Filothei

Marousi Athens Greece

Tel: 0113-093-217-9451

Fax: 0113-010-685-4051

e-mail: marfansyndromegr@yahoo.com

 

Ireland

 

Mary O'Driscoll

Marfan Syndrome Support Group Ireland, Ltd

78 Whitehorn Drive

Palmerstown, Dublin 20

Ireland

e-mail: Marfan@eircom.net

http://www.marfan.ie

 

Italy

 

Silvia Salice

Associazione Vittorio

Strada alla Villa d'Aglié 23/3

I-10132 Torino

Italy

Telephone/Fax: ++39 11898 0995

e-mail: michaela.tarantini@marfan.info

www.marfan.info

 

Japan

 

Yoko Shimozaki

Marfan Network Japan

Higashi-nakashinjuku2-1-23

Kashiwa, Chiba

Japan

Tel 81-4-7169-3484

FAX 81-53-454-6764

e-mail: info@marfan.gr.jp

www.marfan.gr.jp/

 

Mexico

 

Geraldine Duran

Sindrome de Marfan de Mexico A.C.

Paseo de Lilas #92

Loc. 58, Suite 143

Bosques de Las Lomas

Mexico D.F. C.P. 05120

Mexico

Tel: 55 5245 2260

e-mail: admin@marfan.org.mx

www.marfan.org.mx

 

Netherlands

 

Peter Alkemade

Contactgroep Marfan Nederland

Buitenkamp, 3

NL-7429-AV Colmschate

The Netherlands

Tel: ++31 570 56 46 91

e-mail: l info.marfan@shhv.nl

www.shhv.nl

 

New Zealand

 

No current contacts

 

Norway

 

Wenche Snekkevik

Marfanforeningen co/FFO

PB 4568

0404 Oslo, Norway

Tel. 47 - 46 66 00 06

E-mail: info@marfan.no

wenche@marfan.no

http://www.marfan.no

 

Perú

 

La Asociación Peruana del Síndrome de Marfan (APSIM)

Cecilia Delgado Tello

Calle Carlos Aguirre 189 – 301.

Urb Prolongación Benavides. Santiago de Surco.

Lima. Perú

Telefono : (511) 2743767

e-mail: marfanperu@marfanperu.org

Web site: http://www.marfanperu.org

 

Poland

 

Polish Marfan Association

Swietojanska 49/17

PI-81-391 Gdynia

Poland

Telephone: ++48 601286245

Fax: ++48 58 629 4425

e-mail: marfan@marfan.pl

or: marfan@gdansk.sprint.p l

www.marfan.pl

 

Singapore

 

Willie Loh Chung Wei

Blk 471 Ang Mo Kio Ave 10 #11-774 SE 560471

Republic of Singapore

Telephone: + 65 9145 5708

e-mail: Lchungwe@yahoo.com

 

Singapore Marfan Support

www.marfansingapore.org

e-mail: support@marfansingapore.org

 

Slovakia

 

Maria Dusinska

Slovak Marfan Association

Institute of Preventive and Clinical Medicine

Limbova' 14

SK-83301 Bratislava

Slovakia

Tel: ++42 12593 69270

Fax: ++42 12593 69270

e-mail: dusinska@upkm.sk

http://members.fortunecity.com/marfan

 

South Africa

 

South African Marfan Syndrome Organisation

(Suid-Afrikaanse Marfansindroom Ondersteuningsgroep)

P.O. Box 7294

Pretoria

0001

South Africa

Telephone:(+27) 11 333 3894

 

e-mail: info@marfan.org.za

http://www.marfan.org.za

 

Online Marfan Syndrome diagnosis tool:

http://www.marfan.org.za/diagnosis.html

 

Spain

 

Damelys Fumero Uzcanga

SIMA, ASOCIACION SINDROME DE MARFAN

TRAVESIA ARBOLANTXA 12 4º D

48004 BILBAO

secretaria@marfan.es

www.marfan.es [1]

0034 648 035 180 (Se atienden los martes y jueves de 10:00 a 12:00)

 

Sweden

 

Karin Olsson

Svenska Marfanföreningen

c/o Ulla Frick

St. Eriksgatan 50 A

112 34 Stockholm

Sweden

Tel: +46 8 651 3609

e-mail: bertil.frick@swipnet.se

karin.olsson@vansterpartiet.se

www.marfanforeningen.se

 

Switzerland

 

Marfan Stiftung Schweiz

Marktgasse 31

CH-3011 Bern

Switzerland

Telephone: 41 31 312 11 22

Fax: 41 31 312 11 20

e-mail: info@marfan.ch

www.marfan.ch

 

Syria

 

Mohammad Mouchli

Tel:00963-11-6664647

Tel:00963-11-6662864

P.O.Box:16428 Damascus -Syria

Email: Marfan@Shuf.Com

 

United Kingdom

 

Diane Rust

Marfan Association UK

Rochester House

5, Aldershot Road

Fleet, Hampshire GU51 3NG

United Kingdom

Telephone: ++44 1252 810472

Fax: ++44 1252 810473

e-mail: marfan@tinyonline.co.uk

www.marfan.org.uk/

 

United States

 

Carolyn Levering

National Marfan Foundation

22 Manhasset Avenue

Port Washington, New York 11050

USA

Telephone: ++ 516-883-8712

++800-862-7326

Fax: ++516-883-8040

e-mail: staff@marfan.org

www.marfan.org

 

World Organizations:

 

Beatruce Preston

Chairman

European Marfan Support Network (EMSN)

Römerweg 4

CH-4410 Liestal

 

Switzerland

+41 61 921 91 89

e-mail: preston5@bluewin.ch

Priscilla Ciccariello President

 

International Federation of Marfan Syndrome Organizations (IFMSO)

 

c/o National Marfan Foundation

22 Manhasset Avenue

Port Washington, NY 11050

e-mail: Cilla71@aol.com

www.marfanworld.org